Here's a quick update, since I haven't been blogging a lot lately. First I'd like to point out that I haven't been blogging a lot lately because I've been busy living my life and am spending a lot less time laying around in bed or on our couch. Last Monday, (seven days ago) marked my 8th week of treatment at West Clinic. While I still have days where I don't feel great, they are becoming so few and far between that we have almost gotten back into the groove of normal life! It has been wonderful and exciting, and I am so, so happy.
For those of you that are new to my blog, I have been battling Lyme Disease since late summer of 2003, although I didn't know it was Lyme until I was finally diagnosed and saw an LLMD in January of 2009. By that time I was extremely ill, with a whole litany of issues that had all but shut me down both physically and cognitively. I did two years of combination antibiotic therapy followed by a couple years of somewhat normal health, but I haven't ever felt back to "pre-lyme-self" in about a decade. I began to relapse in November 2012, and by March of this year I could hardly function, requiring almost constant care for both myself and my kids anytime my husband was not home. It was crazy, stressful, frustrating and gave me a sense of hopelessness that I believe I have never before experienced in my life. It was pretty bad.
So, eight weeks in, I'm feeling 85% better, and usually, other than my treatment days, (which are now only once a week) I'm practically back to normal. I've been taking my kids for walks to the park, planning outings with friends and doing all sorts of "normal" activities that I haven't been able to do for quite a while now. Last month, my husband and I went on a week-long camping trip where we did several different hikes (4 miles long) on back-to-back-to-back days. In the past, on a really good day, I might have been able to do one of those. But then I would pay for it by being out-of-commission for the next 3 or 4 days. To be able to participate in activities like that 3 or 4 days in a row, and continuing to wake up the next morning feeling good, has been amazing. It's been awesome to see that I really am getting my strength and energy back.
I will continue treatment for probably at least the next couple of months, but I'm happy to do it, since I feel like I am really improving, in ways I haven't seen in the last five years. It's very exciting, and I'm loving being able to participate in my own life again!
Take courage friend. There is light at the end of the long lyme tunnel. Best to you and your family.
ReplyDeleteI am in tears as I read the last few posts of your blog. I have been battling the symptoms of Lyme disease for over a year now (I think I may have had it for at least 5 years), and it has been the toughest year of my life. I am moving to southern Idaho at the beginning of October, and I have an appointment at the West Clinic shortly after we move. Your story gives me so much hope! I am so very happy for you! I hope I can recover as you have.
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